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Book Published in French.
Chronic renal diseases are typically incapacitating, characterised by slow, gradual progression and finally requiring costly and difficult to bear replacement therapy.
Disease progress and medical decisions are characterised by a general lack of certainty which places the patient, healthcare professional (particularly the doctor) and the healthcare policy of the society as a whole, at the very heart of the disease.
Taking into account the patient's point of view when treating the disease and using the patient's opinion as a key indicator in disease management or to assess therapies administered is therefore particularly appropriate.
Of the different indicators taking into account the patient's point of view, Patient Reported Outcomes (PROs), quality of life related to health and degree of satisfaction related to treatment are of particular importance.
CONTENTS :
- Chronic renal disease: characteristics justifying the value of the patient's point of view
- The patient's opinion on his/her health and care: value and limitations
- Quality of life. Concepts and measurement
- Satisfaction with care. Concept and measurement
- Quality of life related to health before terminal renal failure
- Quality of life related to health at the start of terminal renal failure
- Quality of life, satisfaction et replacement therapy. Dialysis
- Quality of life, satisfaction and replacement therapy. Transplantation
- Quality of life, family and friends, social support
- Special population: children
- Special population: the elderly
- Appendices
- Bibliography